Research advocates are ovarian cancer survivors who "help funding agencies and scientists understand and prioritize the questions that are important to the ovarian cancer community," (ONCA website).
An ovarian cancer research advocate will receive training through the Ovarian Cancer National Alliance's (OCNA) research advocacy program.
The following is a little more about what a research advocate does, and some of the criteria to become one. This is from the OCNA website.
Research advocates serve a variety of functions, including:
- Designing research studies and recruiting participants
- Reviewing research proposals
- Participating in clinical trial design
- Participating as a member of an advisory council, task force or Institutional Review Board
- Attending scientific conferences, collecting information concerning ovarian cancer and disseminating this information to the community
Individuals who wish to become Ovarian Cancer National Alliance Research Advocates must meet the following criteria:
Sign up here.
- Have a personal experience with ovarian cancer either as a patient or caregiver.
- Have a demonstrated willingness and ability to learn more about ovarian cancer and related issues.
- Be fluent in English and have at least a high school diploma.
- Have regular contact with an ovarian cancer-related organization.
- Have a basic understanding of the research process.
- Have significant contact with the ovarian cancer community.
- Have the ability to share the collective patient perspective with the scientific community in written and oral communication.
- Be able to read and comprehend scientific articles and/or grant applications in order to provide an accurate statement of the collective patient perspective.
- Be able to refine research questions to increase their relevance to patients.
- Be able to recruit patients to participate in clinical trials.
- Be willing to share research results with the community in a variety of meaningful ways.